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DeOndra Dixon INCLUDE Project Act of 2026

S. 1838 Sen. John Hickenlooper (D-CO) Passed Senate
Bill text PDF
  1. Introduced May 21
  2. Committee May 21
  3. Passed Senate Aug 6
  4. Passed House Next
  5. To President Not yet
  6. Law Not yet
Where it stands
Passed Senate, Aug 6, 2026Next: House vote
79d ago Aug 10, 2026: Held at the desk.
Final votes
No roll callsNo recorded vote on this bill yet
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Summary

This bill amends the Public Health Service Act to authorize the Secretary of Health and Human Services to carry out a program of research, training, and investigation related to Down syndrome. Sec. 2, DeOndra Dixon INCLUDE Project: The Director of NIH shall carry out a program of research, training, and investigation related to Down syndrome, known as the INCLUDE Project. The program includes high-risk, high-reward research on trisomy 21 effects; promoting research across the lifespan, including cohort studies; expanding clinical trials inclusive of or for participants with Down syndrome; research on biological mechanisms; improving diagnosis and treatment of co-occurring conditions; research on causes of increased prevalence of co-occurring conditions like Alzheimer's and autoimmunity; and research on improving quality of life. The Director must coordinate NIH activities on Down syndrome and prioritize nonduplicative research. The Director shall consult with stakeholders, including patient advocates. The Director shall submit biennial reports to Congress cataloging the research, including identification of the institute or center involved, whether research is carried out directly or by multiple institutes, and identification of any resulting real-world evidence for clinical research and medical care.

Summary of the bill text as engrossed in Senate (Aug 6, 2026), generated by SecBot from the official bill text; the Library of Congress summary is not yet published.

Official record from Congress.gov, the House Clerk and the Senate; lobbying from Lobbying Disclosure Act filings. Updated Oct 27, 2026.